Looking for tips on managing Radiation-induced proctitis

When I have bottle of water one hr before treatment have to urinate sometime shortly after and drink more water.Mirolax night before does not create bm next day.

The timing of the bowel and bladder prep can be tricky and it's frustrating when you think you've done everything right and it doesn't work.

I was recently diagnosed after colonoscopy. Radiation ended 17 mos ago.
Current symptom is frequency but I think you may be pointing out my future. I am grateful to be looking at my future above ground.
I do take Imodium if I have a long dental or medical appointment.
76 years old. Best of luck and Happy New Year

They recommend metamucil twice a day. The goal is to prevent irritation in the bowel and rectum so the proctitis symptoms don't reoccur. Good luck! Happy new year.

I’m having the same problem. If I have a bowel movement before noon I’m usually ok for 24 hours. Drinking mushroom coffee for breakfast, sometimes cereal and Boost. Fruits and veggies for lunch. Maybe Hamburg for dinner canned veggie, Lite snacks.

Diagnosed 9 months post radiation, bleeding and fecal incontinece. Treated with suppositories and sucralfate, then colonoscopy with argon coagulation. No benefit from former. Post colonoscopy severe pain and continued bleeding and incontinence. Complicated by need for eliquis. What next? Pain severe now 2 weeks duration. Bleeding inconvenient and unpleasant. Doctors seem unsure.

I am sorry that you are going through this, and unfortunately I don't have any suggestions. But having being treated with radiation myself I am curious as to what your regiment was, and how old you are.

I am 68, had 5 SBRT treatments with a Barrigel spacer and I am 9 weeks out of treatment. Any info you are willing to share will be appreciated.
Thanks.

I was 84 at treatment which was deemed necessary for my prostate cancer even at my age and I am very functional and active. I had 28 treatments without spacer ending January 2023. While there were always mild symptoms, they gradually became more serious. While there may be treatments, my need for eliquis (pacemaker), seems to be a complication

Thank you Brother. I hope you get some good information off our forum here.

lhs38,
Next you find a gastroenterologist who will use a special wand for radiofrequency. Dr Buxbaum at USC
1520 San Pablo St, Los Angeles, CA 90033 Phone: (323) 442-5100 will know exactly what you are asking for.
It is a procedure commonly done for hospitalized patients and not widely known by physicians outside. Proctitis is inflammation of the rectum. Radiation Proctitis is not a simple inflamation of the rectum. After the first treatment, the bleeding was greatly reduced. You may need serveral treatments.
I was told by many GIs and two Oncologists to get used to it; there was no remedy.
You want the procedure using the Halo 90 wand.
The procedure is painless Though they often use anesthesia, I never have it because I have to drive myself. It is an outpatient procedure done in hospital for people like us.