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Misdiagnosed Mac

MAC & Bronchiectasis | Last Active: Jan 9 8:49am | Replies (33)

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@tracy111869

I have bronciastasis and Mac. Been a struggle last few years. I have been on arihomizon and ethambutol for 13 months. Been suffering side effects nausea vision issues fatigue. Also given arikayce recently. I had it with side effects . I was still positive for mac on 2 drug regimen then prescribed arikayce. I started holistic approach About 3 months ago. I have been using garlic oregano cloves vinegar and using my aflo vest 2x a day for clearance. Last 2 sputum negative for Mac and 3rd no growth weeks into culture. Just goes to show you drugs are not always the answer.

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Replies to "I have bronciastasis and Mac. Been a struggle last few years. I have been on arihomizon..."

Interested in your holistic approach-how did you discover this combo and how did you prepare it and how often and was it a tea you drank or something you inhaled ? I’d love to know the details please

Hi, would you mind sharing more about the holistic approach you are using. How do you take the herbs you mentioned and the vinegar, and how often. I was diagnosed last May with what you have but have had no symptoms. Since June I have had Pneumonia, shingles, flu and Covid. Since October I have had nothing, thank God. My ID Dr. does not want to start me on the Big 3 because of the horrible side effects; however my Pulmo Dr. wanted me to take all 3 at once. I refused. Thank you for sharing.

What is your recipe for garlic, oregano, clove and vinegar? How do you take the cloves, oragano and vinegar?
Does your pulmonologist order the vest?