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@loribmt

Anita, it’s ok to be in the dark about some of the medical issues that may pop up with Alex…that’s why he has doctors. This occurrence with his hip may have nothing to do with his transplant at all. When we go through a life altering event such as a stem cell transplant, it feels natural to correlate every unusual thing that pops with that event. But sometimes things just happen and who knows, they may have taken place anyway. Regardless, we deal with these little events as they come.

Alex is well past the initial critical period of 100 days. So now issues, if any, that may pop up related to his transplant will generally develop slowly without escalating quickly. That was more of a concern in the early days.

I hope everything goes smoothly and no surgery is necessary. It’s not a setback, just a little snag. Please let me know what you found out. ☺️

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Replies to "Anita, it’s ok to be in the dark about some of the medical issues that may..."

Hi Lori,
This new year has presented Alex(us) with new mysteries without answers. Initially, he was doing alright with BMT recovery. Then he received a Flu shot and "things" started going downhill. I'm now suspecting that he has VEXAS. I've just recently discovered this condition and am waiting to hear back from Alex's BMT-Team. Any thoughts?
Thanks,
Anita & Alex