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My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: Jun 18 8:57pm | Replies (402)
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@leilab1

Lori,
I'm so happy to hear that you are doing well! I'm afraid I have no answers yet and test results may not be available until Tuesday Jan. 2nd. 🙁 Alex's Orthopedist told him there are two possible outcomes: either it's just infection or "something else" which would require surgery.
This leads me to think it could be a synovial cyst (?) Alex isn't presenting with any other symptoms: no headaches, rash, swelling. I mentioned the possibility of GVH and was told they think that's "highly unlikely". I'm really in the dark on this one.
Anita

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Replies to "Lori, I'm so happy to hear that you are doing well! I'm afraid I have no..."
Lori, Volunteer Mentor | @loribmt | Dec 30, 2023

Anita, it’s ok to be in the dark about some of the medical issues that may pop up with Alex…that’s why he has doctors. This occurrence with his hip may have nothing to do with his transplant at all. When we go through a life altering event such as a stem cell transplant, it feels natural to correlate every unusual thing that pops with that event. But sometimes things just happen and who knows, they may have taken place anyway. Regardless, we deal with these little events as they come.

Alex is well past the initial critical period of 100 days. So now issues, if any, that may pop up related to his transplant will generally develop slowly without escalating quickly. That was more of a concern in the early days.

I hope everything goes smoothly and no surgery is necessary. It’s not a setback, just a little snag. Please let me know what you found out. ☺️

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