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Has anyone been diagnosed with GFAP

Autoimmune Diseases | Last Active: Apr 15 7:49pm | Replies (54)

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@johnbishop

Hello @humphrey, Welcome to Connect. I know it must be terribly concerning to have your husband diagnosed with such a rare condition as glial fibrillary acidic protein astrocytopathy (GFAP). @gardrums123 and @hassel may be able to share some thoughts or suggestions with you. You also might find the article listed earlier in the discussion helpful for learning a little more about the condition.

Here is a link to the same article and another one that is similar:
--- Autoimmune glial fibrillary acidic protein astrocytopathy: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6522205/
--- Autoimmune Glial Fibrillary Acidic Protein Astrocytopathy: A Review of the Literature:
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6290896/

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Replies to "Hello @humphrey, Welcome to Connect. I know it must be terribly concerning to have your husband..."

Thank you for the information. My husband has not been definitively diagnosed, but this comes very close. He has many but not all of the symptoms described in the article, along with an abnormal result in his GFAP screening. Hope to learn more soon