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PMR - possible diagnosis

Polymyalgia Rheumatica (PMR) | Last Active: Jan 14 5:00pm | Replies (33)
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@nyxygirl

@nancy53 greetings ! I don't recall a single person on this forum , where i have enjoyed and benefited from the give and take, ever mentioning taking Prednisone EVERY OTHER DAY ??
What was a helpful suggestion for me and others was/is SPLITTING the dose - take some in morning and again at dinner-time for example. In your research perhaps you stumbled across PMRandIl6.com ? scroll over to the resources Tab and you can watch two videos. And presumably you are aware that there is a FDA approved biological for PMR = Kevzara ( anti-IL6 Receptor)
The next step will your tapering schedule, but managed by which of your doctors i wonder ?
You might like reading the comments in the manuscript i will attach -- the very sudden onset of symmetrical /morning stiffness in shoulders and hips was something i noted because i was keeping pain journal for my knee. many people on this forum also keep excel spreadsheets or heat maps of pain/stiffness vs the dose of Prednisone .
Hoping for happy healthy 2024 for each of us : )

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Replies to "@nancy53 greetings ! I don't recall a single person on this forum , where i have..."
nancy53 | @nancy53 | Dec 30, 2023

The doctor that is dosing me like that is a dermatologist with a PHD from Harvard in immunology.

It seems to be working. I've only been doing it for a week. I'll keep with it until I see the Rheumatologist.

Since synthetic cortisol fools your body into not making it, I theorize that taking it every other day keeps your body actively producing it. I don't know.

I thank God he prescribed it, my PCP was a little too cautious and the pain was not mitigated long term with the two 6 packs he gave me.

Thanks for the articles - I'll read them later.

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