Hi there and welcome! So glad you found Mayo Connect because it is a supportive, comforting place to come. I'm very sorry to hear of your pain and obstacles.
I was just reading about managing the psychological aspects of pain, which is found in a Small Fiber Neuropathy book that I own and often refer back to. Pain is pain no matter the diagnosis.
You know how when medicine is all you seem to have, not many people surrounding you can truly relate and you continue to not know what else to do?
This book shares various ways and beliefs to retrain your brain through Cognitive Behavioral Therapy, Acceptance and Commitment Therapy, Mindfuness-based Therapy and a new one I just learned about is Eye Movement Desensitization and Reprocessing! Wow!!! It's not for everyone but desperate times can call for desperate measures.
I wish you all the best in learning through this forum. There are plenty of great people who will listen, care and share.
Best of luck to you in your journey.
Rachel
...one more simple thought...if you are able, keep a journal and just keep writing! Write what scares you, maddens you. Write what you worry about, what you hold out hope for. Try to write about something each day that brings a smile to your face even through your pain. It has worked for me and I hope it works for you.