Hi @leilab1 There must have been a ‘connection’ between us this morning! I woke up thinking I needed to check with to see how Alex is doing because it had been really quite a while since we’ve spoken. And, boop, here you are!
I’m so happy to hear he’s been doing really well considering all the uncertainty in his earlier days of the transplant. How is his appetite and activity level? Keeping in mind…as I was reminded so many times by my team…this is a marathon, not a race! But with Alex being young, it can be really frustrating not being fully active like he was prior to transplant. It gets better!! Tell him I’m going to be 70 in a few days and feel like I’m 24…seriously! It just takes time! ☺️
This event with his hip isn’t anything I’ve experienced. Has he been doing any extra exertion, exercises, etc., that may have caused inflammation there? Do his doctors feel this is in anyway related to gvhd?
Wishing you and your a family a very happy, Healthy and uneventful New Year!! Lori
Lori,
I'm so happy to hear that you are doing well! I'm afraid I have no answers yet and test results may not be available until Tuesday Jan. 2nd. 🙁 Alex's Orthopedist told him there are two possible outcomes: either it's just infection or "something else" which would require surgery.
This leads me to think it could be a synovial cyst (?) Alex isn't presenting with any other symptoms: no headaches, rash, swelling. I mentioned the possibility of GVH and was told they think that's "highly unlikely". I'm really in the dark on this one.
Anita