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DiscussionMy Bone Marrow Transplant (BMT/SCT) story: Will you share yours?
Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: 1 hour ago | Replies (585)Comment receiving replies
Replies to "Hi There Lori, Hoping all is well with you and yours! Haven't spoken with you in..."
Hi @leilab1 There must have been a ‘connection’ between us this morning! I woke up thinking I needed to check with to see how Alex is doing because it had been really quite a while since we’ve spoken. And, boop, here you are!
I’m so happy to hear he’s been doing really well considering all the uncertainty in his earlier days of the transplant. How is his appetite and activity level? Keeping in mind…as I was reminded so many times by my team…this is a marathon, not a race! But with Alex being young, it can be really frustrating not being fully active like he was prior to transplant. It gets better!! Tell him I’m going to be 70 in a few days and feel like I’m 24…seriously! It just takes time! ☺️
This event with his hip isn’t anything I’ve experienced. Has he been doing any extra exertion, exercises, etc., that may have caused inflammation there? Do his doctors feel this is in anyway related to gvhd?
Wishing you and your a family a very happy, Healthy and uneventful New Year!! Lori