1. < Neuroendocrine Tumors (NETs)

How do I know somatostatin is in my system?

Posted by gmapam @gmapam, Aug 12, 2023

Good morning all. I have a question.

How do I know if Somatostatin is in my system? Is it necessary for a PETSCAN Copper 64 show other growths in my body. The only one that lit up was the NET in my right lung🙏🏼

Interested in more discussions like this? Go to the Neuroendocrine Tumors (NETs) Support Group.

Mentor
Teresa, Volunteer Mentor | @hopeful33250 | Dec 24, 2023
In reply to @gmapam "Hello Well it’s getting close to surgery time 12/26 7:00am. Twenty three years to the day..." + (show)
@gmapam

Hello
Well it’s getting close to surgery time 12/26 7:00am. Twenty three years to the day 12/26/2000 when breast cancer was removed from my right breast… still breast cancer free!!! There has been a discovery of a thoracic aorta aneurysm that shows to be four centimeters. Waiting to hear from any of the three drs the CTA w/ contrast was sent to see if this will affect my thorascopic lobectomy of the middle lobe of my right lung😵‍💫. This new discovery has started the roller coaster of emotions.

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I appreciate hearing from you with the update about your upcoming surgery, @gmapam. I will certainly keep you in mind for the next few days. I can imagine that the discovery of the thoracic aortic aneurysm has created a "roller coaster of emotions" as you said in your post.

Was this aneurysm discovered by a CT scan when the doctors were looking for something else, or were you having symptoms that led them to find this new problem?

REPLY
Moderator
Colleen Young, Connect Director | @colleenyoung | Dec 30, 2023
In reply to @gmapam "Hello Well it’s getting close to surgery time 12/26 7:00am. Twenty three years to the day..." + (show)
@gmapam

Hello
Well it’s getting close to surgery time 12/26 7:00am. Twenty three years to the day 12/26/2000 when breast cancer was removed from my right breast… still breast cancer free!!! There has been a discovery of a thoracic aorta aneurysm that shows to be four centimeters. Waiting to hear from any of the three drs the CTA w/ contrast was sent to see if this will affect my thorascopic lobectomy of the middle lobe of my right lung😵‍💫. This new discovery has started the roller coaster of emotions.

Jump to this post

Thinking of you @gmapam. I hope recovery is going well.

REPLY
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