Connect
Comment receiving replies
I have polymyalgia rheumatica & the complication, Vasculitis. My Sed rate & CRP were in the hundreds when I was diagnosed at Mayo in May 2022. I was put on a massive dose of prednisone & started on an Actemra infusion. My inflammation dropped to normal levels in just about 2 months. I tapered off the prednisone completely by the end of September 2022. My inflammation rates have been normal. I have minor side effects from the Actemra but have felt absolutely normal since I started with Actemra. I have my infusion every 4 weeks. We tried to stretch it to 6 weeks but my CRP started to go up so I guess I need to be on it a little longer. But let me emphasize how normal I have felt since starting Actemra & how I might be dead if it wasn’t for the wonderful doctor who diagnosed me at Mayo. I’m in the care of a great team of doctors here.
Replies to "I have polymyalgia rheumatica & the complication, Vasculitis. My Sed rate & CRP were in the..."
Lucky you that you can be treated by Mayo doctors. Sounds like you are doing really well. I was up there with GCA and was diagnosed somewhere around 2014 only to get home and not have a doctor here in Florida that knew about the disease and could treat me. There was no Actemra then either.
Connect
I have rheumatoid arthritis and have infusions of Actemra every 4 weeks. It has really helped me. My rheumy said he is considering possible changing the frequency. Interesting what you experienced by changing. Hmmm... curious what my doc will do.