Wow, you’re doing a lot and I can relate. Most people don’t realize just how stressful and draining this constant disorder can be. Mine has lasted since September 11, 2023! I hope yours doesn’t last that long. I have prepared myself for the possibility mine may be permanent. At least I still am able to smell most things, or I think I can. I did terrible on the smell test. And, I can still taste some food. Some PCS patients have no smell or taste. They are really suffering.

I can’t imagine constant burning in my mouth. I hope you find a solution.

I have read about getting injections in the neck for taste disorders. Also, stimulating the vagus nerve.

I never dreamed I would encounter something so bizarre. I fantasize being free from this. At times, I feel like I’m being tortured, as I also have tingly hands and feet, phlegm in throat and hair loss from PCS.

Please post your progress and discoveries. I’ll pray for your recovery. This must be so hard on you. Are you able to work?

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