Connect
← Return to Burning Tongue Issues?
Discussion
Comment receiving replies
Hi Celia,
My experience is somewhat similar to yours in that while I’m slowly improving from Covid (tested positive on Dec. 4th) I had smell and taste issues too. My smell is vastly improved but the last couple weeks I’ve had this bizarre symptom of a feeling like I burned my tongue but it’s constant now, along with this bitter taste after any food I eat. It’s like it’s trying to repair itself but it doesn’t know how.
I’ve been using everything from smell retraining, cough drops, chlorhexidine mouthwash, Nystatin oral suspension rinse, drinking warm chamomile tea, saltwater rinses, vitamins you name it.
I’ve seen my dentist about it and he’s clueless because he says “it looks fine.”
Well, obviously it isn’t fine or I wouldn’t be here.
I saw my pcp and all she did was bloodwork which was within normal limits. I had to stronger her to do an oral swab (which they called and said didn’t show signs of any irregular bacterial overgrowth.)
So back to square one.
I’m going to schedule an appointment with an oral surgeon to see if he can do any further investigation and possibly a tongue scraping to check for thrush.
I’ve also made an appointment for a local Covid long hauler clinic here in Chicago but I can’t get in until February because of course. 😑
I’ve also been reading any peer reviewed journal articles I can get my hands on that mention Covid tongue and I did come across some infectious disease specialists that have been trying different approaches such as photobiomodulation therapy and stem cell therapy treatments (a current trial is going on at UC Davis.)
I’ve also joined a Covid long hauler Facebook group to connect with others who are going through similar issues in the hopes that maybe we can help each other figure things out since we’re kind of left on our own it seems.
Replies to "Hi Celia, My experience is somewhat similar to yours in that while I’m slowly improving from..."
I’m so sorry you’re suffering. I to have lost my taste and smell due to Covid. I haven’t tasted or smelled anything in over a year, December 14, 2022 to be exact! I am currently having acupuncture to help get it back, so far nothing. I live in the western suburbs of Chicago and was wondering where this Long Hauler Clinic is located as I’d like to make an appointment myself. I have an upcoming appointment in January to see a new ENT and am really praying I get some answers and some relief. Again, I’d really like the name of the Long Haulers Clinic. Thank you!
For burning mouth I use ibprophen. It’s a nerve thing , cool things are best but not cold or hot or salt rinses.
Hi Celia,
I have already responded to you, but I live in Batavia, Il and am wondering where this Long Haulers clinic is in Chicago. Is it part of Northwestern or somewhere else? I’ve had no taste or smell since last December 14th to be exact and would be grateful for this information. Thank you and I hope you continue to heal.
Connect
Wow, you’re doing a lot and I can relate. Most people don’t realize just how stressful and draining this constant disorder can be. Mine has lasted since September 11, 2023! I hope yours doesn’t last that long. I have prepared myself for the possibility mine may be permanent. At least I still am able to smell most things, or I think I can. I did terrible on the smell test. And, I can still taste some food. Some PCS patients have no smell or taste. They are really suffering.
I can’t imagine constant burning in my mouth. I hope you find a solution.
I have read about getting injections in the neck for taste disorders. Also, stimulating the vagus nerve.
I never dreamed I would encounter something so bizarre. I fantasize being free from this. At times, I feel like I’m being tortured, as I also have tingly hands and feet, phlegm in throat and hair loss from PCS.
Please post your progress and discoveries. I’ll pray for your recovery. This must be so hard on you. Are you able to work?