Dear @ginny100 - I am very sorry to hear of your development!

I am not a doctor and have not had this myself, but I have 2 friends who also had mastectomies; however, they, too, experienced a similar issue. It is not as rare as it may appear and can be caused by a number of cancers (Ovarian, Lung, etc.). It seems to be a more common development with Breast Cancer.

Given your diagnosis of "LABC , Locally Advanced Breast Cancer", it seems that your breast cancer has spread only to nearby tissue. However, you need more tests to ensure this site is the only one. You may have additional sites. And you do need to be treated, even if this is the only site.

As I mentioned, I am not a doctor, but please, @ginni100, don't wait; I highly recommend you seek immediate attention. If you don't have much faith in your current doctors, please go to a good Cancer Center. If you need help finding a good cancer center, let us know, and we may be able to give you good recommendations.

Some Information:
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9097810/#:~:text=Locally%20advanced%20breast%20cancer%20(LABC,metastasis%2C%20staging%20exams%20are%20necessary.
Please let us know if we can help you.

HUGS,

D.