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Chronic Pain members - Welcome, please introduce yourself

Chronic Pain | Last Active: 9 hours ago | Replies (7067)

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@elmay

I know that self-diagnosis is a dangerous thing, but I also know that those of us who suffer with unknown pain keep searching for the answer. Recently I read quite a lot about CSF Leakage, and I truly believe that is what is going on for me. Does anyone have first hand experience with cerebral spinal fluid leakage? I would love to hear from you about what symptoms brought you to the diagnosis. The more I read about it the more I find I have almost all the symptoms. I have an appointment with a neurologist on the 21st. I hope I can deal with the non-stop headache till then. I also hope he doesn't laugh at me for trying to be my own doctor. Please let me know what you know about this problem. Thanks

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Replies to "I know that self-diagnosis is a dangerous thing, but I also know that those of us..."

Hello

The only thing I can attest to is a fluid leak after my spinal tap that left me with a spinal headache. I've been debilitated by migraines and in and out of urgent care for such but, this headache was very distinctive! Ended in ER receiving a blood patch and was good there after.

Wishing you all the best for a diagnosis.
Rachel