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Post covid neuropathy/bfs?

Neuropathy | Last Active: Apr 15 8:49am | Replies (54)

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@jipc

Thank you! I work with a compounding pharmacy ( don't know yet if they will make it), but I will call them today to ask.. If not, I'll try the one you use! But same as you, no doctor has been able to help me, and the neurologist was basically useless after 5 visits and multiple tests he refused to give me a diagnosis and has not released test results. I have a new GP and I hope she may be more sympathetic.
I am curious, why did you decide to go up to the higher dose? Did the low dose stop working for you?
Are you combining with other medications or are you now taking only the LDN?
I really appreciate your reply, and good to know you are finding relief!!!! Yah!

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Replies to "Thank you! I work with a compounding pharmacy ( don't know yet if they will make..."

These are good questions. I believe I wanted to titrate up because everything I read said that the optimal dosage was 4 mg. But it seems silly to have to take more if the dosage I’m at now is optimal. I did not get full relief until I reached 1.5 mg. My tablets were 2 mg tablets so it just made sense to try to push up to two and then settle in.

I take other nutritional substances, like NAC, and lipoic acid. They helped me a little bit before I started LDN. I routinely take magnesium, D, Selenium, and a multivitamin. I do not take any other medication’s.

I learned about LDN from TikTok. Crazy, right? My favorite pharmacist is Jade @ldn_direct. I have asked her many questions, and she always gets back to me. She recommends the same pharmacy I use. She is a wealth of knowledge, and if you can watch her videos, I think you’ll be very pleased.