Hi Sandra @sksnow, welcome to the boring world of SIADH. I've been dealing with it for over three years now. I have non-small cell adenocarcinoma with the EGFR mutation, Exon 19. I take a pill a day, and no recurrence for over 3 years.
How's your blood work? My SIADH caused low sodium levels -- very low at 126. My Oncologist referred me to a Nephrologist (kidney specialist) who restricts me to a maximum of 50 to 60 oz of fluid a day. I do let myself have 1 cup of coffee in the morning and an occasional cocktail in the evening, but I count the ounces. As long as I keep it around 55 oz a day, my sodium level stays around 131. (I'm fortunate to have bloodwork records dating back to before I had cancer which show I've always been on the low side.) I'd had some cramping before, but that's gone away with the fluid restriction.
So there. Now you've read something on the Internet that says SIADH can be no big deal. Personally, I believe the positive news until I'm forced to do otherwise. I'm a lot happier, more active, and more productive this way.
I wish you all the best and a Happy, Healthy New Year!
Thanks for the information, I am so lost and confused. My results came back and its SCLC. I as worried about it being that one. I am being fast tracked for treatment and have port surgery scheduled for Tuesday already, brain MRI, and another needle biopsy all within the week. A whirlwind of activity for sure and i am thankful they’re all over it, but also scared to death. My total ignorance about managing my SIADH is a biggie for me. Mine always reads 125 sodium every time i have bloods done. Now I'm only having one cup of coffee and one 20oz Gatorade per day. Im scared to drink anything. Am I dehydrating myself? Guess ill see when i do labs again tuesday. Thanks again for talking with me, it helps alot.