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Post covid neuropathy/bfs?

Neuropathy | Last Active: Nov 5 12:16pm | Replies (60)

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@lindasue716

Hello. I would be happy to share a bit more about my experience with LDN. After seeing two neurologists, neither of them were able to help me. Nor were they willing to prescribe LDN after I had discovered it. My dermatologist, who is studying Integrative medicine, was willing to prescribe this to me. You then need to find a compounding pharmacy. I use “Carefirst” mail order.

I still take LDN, daily, and all of my original neurological symptoms are gone. I started very low at .5 mg. It took me almost a year to titrâtes up to 2 mg due to side effects. (Headaches and recurring neurological symptoms when I went up). My body needed lots of time to adapt to this drug. I am now taking 2 mg per day and that is perfect for me.

I hope this helps. 🙏🏻

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Replies to "Hello. I would be happy to share a bit more about my experience with LDN. After..."

Thank you! I work with a compounding pharmacy ( don't know yet if they will make it), but I will call them today to ask.. If not, I'll try the one you use! But same as you, no doctor has been able to help me, and the neurologist was basically useless after 5 visits and multiple tests he refused to give me a diagnosis and has not released test results. I have a new GP and I hope she may be more sympathetic.
I am curious, why did you decide to go up to the higher dose? Did the low dose stop working for you?
Are you combining with other medications or are you now taking only the LDN?
I really appreciate your reply, and good to know you are finding relief!!!! Yah!