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Post covid neuropathy/bfs?

Neuropathy | Last Active: Apr 15 8:49am | Replies (54)

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@jipc

Hello,
Please share more about this LDN medication. After reading your post, I did research and it seems very promising. If it is working for you, you need to shout it from the rooftops!! I have horrible pain and nothing has helped. Problem is, it seems to be difficult to find at the low dose. A 4.5mg or 3.0mg is suggested in the research. How did you find the low dose you are taking? Have you noticed any side effects? I'm going to ask my pharmacy and doctor today if I can get this to try. Please keep posting!!! Many thanks for sharing!

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Replies to "Hello, Please share more about this LDN medication. After reading your post, I did research and..."

Hello. I would be happy to share a bit more about my experience with LDN. After seeing two neurologists, neither of them were able to help me. Nor were they willing to prescribe LDN after I had discovered it. My dermatologist, who is studying Integrative medicine, was willing to prescribe this to me. You then need to find a compounding pharmacy. I use “Carefirst” mail order.

I still take LDN, daily, and all of my original neurological symptoms are gone. I started very low at .5 mg. It took me almost a year to titrâtes up to 2 mg due to side effects. (Headaches and recurring neurological symptoms when I went up). My body needed lots of time to adapt to this drug. I am now taking 2 mg per day and that is perfect for me.

I hope this helps. 🙏🏻