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Anyone tried Actemra (Tocilizumab) to treat PMR? FDA approved for GCA

Polymyalgia Rheumatica (PMR) | Last Active: May 21 8:50pm | Replies (107)
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@southtexas

Krueg, since you’re taking a biologic that has risks you might look into Kevzara which is also a biologic that has risks. The difference being that it is approved specifically for PMR. I stopped Kevzara when I developed some health issues, I can get by on 5 mg of Pred so I decided to just stay on that because I’m afraid of cancer risk of biologic’s.

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Replies to "Krueg, since you’re taking a biologic that has risks you might look into Kevzara which is..."
krueg | @krueg | Dec 29, 2023

I think ACTEMRA and kevzara are similar in risks so in think i would be just switching to the same thing. I just don't like the risks but rheumatologist is just so into actemra and thinks Prednisone is worse, which it is terrible and has alot of side effects which are bad. I feel like the choices we have are really like not having any choice... all the medications are not good

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isabelle7 | @isabelle7 | Apr 8 4:41pm

@southtexas
My husband recently began weekly injections of Actemra for giant cell arteritis (GCA - diagnosed Feb 2024.) He had PMR first (diagnosed in May 2023). You mentioned you're not taking a biologic (Kevzara) because you're afraid of the cancer risks of biologics. Do you know how high the risk is?

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