Connect
← Return to PMR: Are there treatment alternatives to Prednisone?
Discussion
PMR: Are there treatment alternatives to Prednisone?
Polymyalgia Rheumatica (PMR) | Last Active: Jan 11 7:08am | Replies (175)Comment receiving replies
Same here
Symptoms slowly got worse after vaccines and contracting actual Covid. I had never felt such muscle pain as I did when I got covid and the fatigue. Went along for a while thinking I was just getting over the covid. After almost a year of my entire life being awful with pain I finally was diagnosed by my GP by accident when given steroids for sinus infection. Didn't help sinus but mercy the pain just disappeared. Have seen a Rheumatologist and she wants me to start on Methotrexate. Scared of meds and don't understand why we can't do steroids for awhile. Anyway will be seeing her in 2 weeks and will discuss why and ask more questions. I'm 66 and have bone density of a normal 27 year old so don't see why no steroids. Anyway thank you to all in this group. It is very helpful to not be alone.
Replies to "Same here Symptoms slowly got worse after vaccines and contracting actual Covid. I had never felt..."
Well....I stayed on the steroids for over a year tapering down but after that the pain is still there pretty much 24/7. The unfortunate part is I don't want to be on steroids the rest of my life. Now at the 68 year mark, I have tried naturopathy docs, juicing and now am trying Lifewave patches. Not sure if they are helping but do some research on your own. Heck no matter if it does not work, it certainly will not hurt! Good luck....best, Shalleen
Connect
Hello @aboucat66, I thought I would pop in and welcome you to Connect while you wait to hear from @shalleenkm55. I've had two occurrences of PMR but fortunately it's in remission now. I think asking questions is a great approach to dealing with the symptoms of PMR. You might find a post by another member helpful for learning more.
Disease stratification in GCA and PMR: state of the art and future perspectives - Document shared by @nyxygirl https://connect.mayoclinic.org/comment/959353/.
I also like to ask questions at upcoming appointments but sometimes forget so I've started writing them down and taking them with me. Do you write down your questions and take them with you to your appointments?