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Post covid neuropathy/bfs?

Neuropathy | Last Active: Nov 5 12:16pm | Replies (60)

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@martinnz

Hi Michele,

Thank you so much for your reply. I am in New Zealand and health care is very poor. Your situation is so much like mine. Since this happened I reduced my work to two days a week, but I am doubtful that I can even manage that as my symptoms continue to decline. Like you I got severe tinnitus just hours after the vaccine and then severe vertigo which lasted months, but fortunately got a lot better (not 100%). Up until recently the situation was at least manageable, but now the muscle twitching is starting in other regions (started in calfs) and I am suffering from severe cramps all over the body. I have also continued to exercise daily as much as possible and feel it is at least slowing the deterioration. After reading your reply I will push for the tests you have had, nerve conductivity and COVID antibodies - hope they can do these tests in New Zealand. Also like you I tried CBD and it did not help. Tried all sorts of painkillers and anti depressants, which if anything, just made things worse. Doctors keep suggesting anxiety, but I have ruled that out as I have come to accept my situation and just make the best of it. I really don't believe it to be the cause. If I find out any new information or something that helps I will let you know, Thanks again. Martin

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Replies to "Hi Michele, Thank you so much for your reply. I am in New Zealand and health..."

Hi Martin. I too am in NZ (Nelson). Where are you located? I just had a weird thought. Maybe we had the same batch? Mine was Batch: ER7449-024. Do you know yours? The antibody test is available here, but you have to pay for it ( and get referred for it) and costs around $100. I went to WGTN for the nerve conductivity test with Dr Ian Rosemergy (again, by referral). If you’d like to chat, send me your phone number to my email address (mysurcouf@gmail.com) and I’ll give you a ring. Cheers Michele