← Return to CAR-T Cell Therapy: Introduce yourself and connect with others

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@colleenyoung

@planaria, I can imagine that you're freaked out about the unknown. As you know, every patient is different and everyone experiences CAR-T cell therapy differently. I'm tagging fellow members like @grandpabob @maryangelasmith @elwooodsdad @esperanza3a @pgollinger @henry55 to share how treatment was for them and the role of their caregivers.

Caregivers are integral to treatment. You may find it helpful to understand the role of caregivers in this information that Mayo Clinic wrote to help caregivers prepare.
- Caregivers for BMT, CAR-T, and Hematology https://connect.mayoclinic.org/blog/caregivers-for-bmt-car-t-and-hematology/

Some of the information may be Mayo Clinic specific, but it can be a place to start and ask questions.

Planaria, Do you have someone who is able to commit to being your caregiver during treatment and after? Often people will have 2 caregivers to split the commitment.

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Replies to "@planaria, I can imagine that you're freaked out about the unknown. As you know, every patient..."

Yes, thankfully I’ve had lots of support. My husband the whole time and kids came and helped some as well.