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Chronic Pain members - Welcome, please introduce yourself

Chronic Pain | Last Active: 13 hours ago | Replies (7067)

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@jimhd

@guga

I think I'll save your post about all of the back, hip, pelvis, and leg pain, and read it when my pain level is up. It will make my pain feel insignificant. I know from experience how painful back pain can be.

I have collapsed on the lawn and deck steps and in the house when out of the blue my right leg suddenly turns to jello. It's pretty scary. I'm fortunate that it hasn't injured me.

I was 55 when I had to retire and start living on Social Security with disability. Medicare has been a Godsend for me. Blue Cross premiums were crazy high. If you're on Medicare, you should be seeing a health professional who will advocate for you, to begin treating your pain. ER shouldn't be your only source of pain medication.

I'm very pleased with the team of doctors who treat me - my PCP, neurologist, pain specialist, orthopedist and various others. When I retired we moved from a tiny town (population 247) that was 3 hours from medical services to a place where I can see just about any kind of doctor within 50 miles. Are doctors accessable to you? Is your PCP happy to refer you to specialists? I know that not all of them want to do that.

When you see your doctor, be sure to be clear about your level of pain. I make a list of things to talk about because if I don't, I remember 2 or 3 things after I leave the clinic. It never fails!

I write in a journal every night, and I rate my day on a scale of one to ten. For depression, ten would be the best day in my life. For pain, it usually fluctuates, so I write the range, from 4-8 or 2-5. The doctors always ask me how the pain has been, and I can tell them what the range has been.

It sounds like a lot of surgeries would be required to treat your spinal problems. Is that something you would consider? Have your doctors talked with you about your options? Do you have access to a physical therapist? Sorry for all the questions. I guess I'm just most. I'm impressed with your will to keep moving. I hope that you soon will find some relief.

Jim

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Replies to "@guga I think I'll save your post about all of the back, hip, pelvis, and leg..."

Thanks Jim you made me feel better I know I have a lot of pain and you're right the ER as my only source of pain relief apparently nobody wants to deal with pain medicine and the other thing.
my PCP well he retired he says he can't treat patients in the United States so he'd rather go back to his own country I'm still on the verge of looking for another PCP but none of them have seen so far to care about the level of pain in my body I guess because they don't feel my pain but a nobody else does. I headed to the Mayo Clinic as my last resort and no I am not retired I didn't know I haven't even thought about it I'm a certified licensed interpreter and own my own business at least whatever is left of it at this time most of my money has gone to providers that did absolutely nothing for me are told me it was in my head or heartburn sad but true so I am still in search of a good pcp
I have a pain specialist here he did give me medication because that is what was ordered hello CVS put my retired doctor's name on the medication by mistake and he defiled my documentation so that I could no longer get any medication I laughed at him when he put me in a back room and told me I was out drug shopping and I couldn't understand even what that meant and then when he mentioned the doctor's name I started to laugh because he is retired him and his wife and he is now on the board of the hospital in our town but whatever I must have embarrassed him that much that he blackballed me so I haven't had regular pain medicine in 2 years and when I finally can get even five days worth I make them last along with adding he and Kohl's trying to stretch and pretending it doesn't hurt yes doesn't really work well but I try I hope that my problems make you feel better LOL

Thank-you for mentioning a daily pain/depression journal. That's exactly what I need at this stage in my pain.