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Symptoms of stage 4 lung cancer - diagnosed 1 month ago

Lung Cancer | Last Active: Mar 24 1:38pm | Replies (69)

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@sksnow

Very sore, and extremely tired. The mass was only 1.88 cm but is attached to several “extensive” largely swollen lymph nodes. Doc says metastatic. I fear that it will be bad because the SIADH is associated with small cell and bad outcomes. Sheesh I think I really need to stay off of the internet, I only slept two hours last night because my brain was on hyperdrive.

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Replies to "Very sore, and extremely tired. The mass was only 1.88 cm but is attached to several..."

@sksnow, try to sleep when you can, your body needs it. I know it's hard to put your mind to rest, so take advantage of those naps. The sedation can make me tired for a few days too. I hope your results come back soon. Having a plan and knowing what I'm dealing with are helpful for me to put my mind at ease.

Hi Sandra @sksnow, welcome to the boring world of SIADH. I've been dealing with it for over three years now. I have non-small cell adenocarcinoma with the EGFR mutation, Exon 19. I take a pill a day, and no recurrence for over 3 years.

How's your blood work? My SIADH caused low sodium levels -- very low at 126. My Oncologist referred me to a Nephrologist (kidney specialist) who restricts me to a maximum of 50 to 60 oz of fluid a day. I do let myself have 1 cup of coffee in the morning and an occasional cocktail in the evening, but I count the ounces. As long as I keep it around 55 oz a day, my sodium level stays around 131. (I'm fortunate to have bloodwork records dating back to before I had cancer which show I've always been on the low side.) I'd had some cramping before, but that's gone away with the fluid restriction.

So there. Now you've read something on the Internet that says SIADH can be no big deal. Personally, I believe the positive news until I'm forced to do otherwise. I'm a lot happier, more active, and more productive this way.

I wish you all the best and a Happy, Healthy New Year!