Hi,
Sorry for the delayed response.
I hope your husband feels better and that the treatment continues to have a good effect on him.
I became (acutely) ill at the beginning of June. Had flu symptoms, fever, headache, body aches and I started vomiting. Was admitted to hospital urgently for investigation, once there my problems increased and I was very confused for weeks. I have no memorys of that period. It turned out that I had severe inflammation in the brain, meninges and spinal cord. After about 3-4 weeks, the diagnosis of gfap-astrocytopathy was confirmed.

The first treatment was plasmapheresis and solu-medrol for 5 days. After that I got prednisolone, first 60mg and then gradually lowering the dose, the plan is to stop cortisone in January. Has also received an infusion with rituximab, which will be repeated every six months to begin with. I have recovered quite well. Had major problems with my balance and tremors in my arms, but it's almost completely gone now. I do have some issues with brain fatigue but it’s also better and improving. I have been able to return to work part-time, hope to gradually increase it from January.
Nor have I found anyone else with the diagnosis, so thank you for sharing your experiences.

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