@val64 Oh, Val, this is very upsetting news. I hadn't seen any posts from you in awhile and as one of our supportive and knowledgeable members I've been wondering about you.
Like you I had a D&C with hysteroscopy and while there was no difficulty accessing my uterus via my cervix I wonder too if this was the "best" approach. I first had an ultrasound that showed thickening endometrial lining and so that necessitated more investigation. I get that part. I trusted my local doctor who chose not to do an endometrial biopsy in the office when he could have accessed the uterus via my cervix as far as I new. When endometrial cancer was diagnosed he told me he was very surprised as he did not think I had the usual risk factors. He didn't ask me enough questions to even know that and I've always been afraid that the D&C with hysteroscopy was what contributed to the recurrence I had two years after the initial hysterectomy.
I have had regular CT scans since the recurrence and I'm scheduled for another set on January 9. I'll come back here and let you and everyone else know the results of my next cancer surveillance appointments.
How can you (or I) help to minimize the D&C with hysteroscopy in the future? How can we push for the methods that you outlined in your post? You wrote that you are angry and I find, at least for me, that anger is a productive emotion. It gets me motivated to accomplish what I need to do.
What is your treatment plan? I am figuring that you will not return to the hospital where you were (mis)treated. As I recall you are in Philadelphia? Is that right? You have many other choices including NYC. What are you thinking you will do?
Thanks for the sympathy, Helen. I said "(mis)treated" because I'm mad and because my treatment has gone poorly, to put it mildly, but I have to acknowledge that my gyn oncologist has pretty much done exactly the job that he is getting paid to do: following the algorithm to provide standard of care treatment. No more, no less. So my problem isn't really with him and his team, it's with the algorithm, which all Drs are basically obligated to follow.
Since I wanted to start treatment ASAP, I am sticking with the same Dr/ hospital. I'm back on 3 week cycles of carboplatin and paclitaxel, but with the immune checkpoint inhibitor Keytruda (pembrolizumab) added too.
I'll let you know if you can help with my campaign against D&Cs /hysteroscopy. I need to slip back into logical scientist mode and read all the literature on this to figure out where the data came from.
Hoping your scan goes well.