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@khd003

Hi - it looks like most of these posts are from a few years ago. I hope you all are doing better!

I had a total thyroidectomy back in 1999… this was due to having a “toxic multi-nodular goiter”. I had multiple nodules… they did a biopsy and it was suspicious for cancer. I was also having symptoms of hyperthyroidism. ..so they removed my thyroid but I didn’t have any other treatment.

I found out in 2017 (after having an MRI of my head for headaches) that my thyroid had grown back! And once again had nodules. Apparently it didn’t grow back all the way and my nodules were small and like “swiss cheese”… so my doctor wasn’t worried about it. I was also dealing with other health problems includes Primary Adrenal Insufficiency.

Well now I just got the results back from a CT scan of my chest - and one of my thyroid nodules has grown to 3.2 cm. I’m going in for an ultrasound tomorrow… apparently that will provide a more accurate picture. I’m just wondering what happened to the people who had their thyroid grow back … did you end up needing surgery again? Or possibly the radiation treatment?

Any feedback is much appreciated!

Thank you!

Karen

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Replies to "Hi - it looks like most of these posts are from a few years ago. I..."

I just changed the filter from “oldest to newest” to “newest to oldest” and found a lot more recent posts and comments! I will read through now and see if I can find some more answers… It seems like this is not so uncommon! One doctor told me that they probably didn’t get all the tissue with my original surgery. It was also thankfully not cancer, so I didn’t need any other treatment at that time - other then getting on the correct form of hormone replacement. 🙏