For those DX with TNBC and completed treatment: What’s your follow up?

I am doing my follow up care at Mayo Jax after wrong treatment and punctured lung at another hospital. I do get regular PET/CT every six months for two years. I will be getting the last one soon. Then scans every 6 months.
I was stage I-II no lymph node involvement.
I take a lipophilic statin (Lovastatin) , as MD Anderson is studying positive results for prevention of TNBC reoccurrence. I take turmeric drink green tea and eat Blueberries every day. So little to be done for TNBC. Interested in whether you do anything for slowing it down.

Hi I am a little more than two years past TNBC treatment. Stage 2a no lymph node involvement. I just see the oncologist or surgeon every 6 months and they physically check you ask if any problems. Then diagnostic mammo every year. I receive zomeda infusions every 6 months for three years. They say helps bones after chemo, I am 70 but no osteoporosis yet. They think it also helps to keep away cancer going to the bones.
I had chemo radiation mastectomy and Xeloda as treatment. I do intermittent fasting almost daily any where from 14 to 16 hours. I was told to excersize and keep weight down. I walk at least 2 to 3 hours a week. I eat lo ts of fruit and bluberries and try to eat more vegetables. Thinking of you . Check some of the u tube videos there are two ladies who talk about met breast cancer. One had TNBC.

Greetings. I was TBNC Stage 3 at time of DX April 21. I did ACT chemo summer of 21, SMX Nov 21, 25 rounds of radiation Jan/Feb 22, 5 months of capacetabine (oral) and then a Clinical Trial for 9 months (Ifetroban) ended August 23. Long haul for sure. I see the Onco every six months and surgeon every six months. At my two year surgical appointment I told her about some new pain that did not seem to be orthopedic. She ordered a CT scan and it came back with mets to liver, bone, lymph system. (Vanderbilt does NOT do routine scans). I have a liver BX scheduled for Dec 29 (took three weeks to get the appointment) and had specialized labs drawn (Tempus) a week ago. The Onco is looked to see if the spread to the liver is TNBC or a new one. After the liver bx he will give me my options to ponder. Needless to say this has been a very emotional holiday. I did everything I could to keep it from coming back. I wish that I had begged for routine scans as it wold have caught the spread earlier widening my options. I got two years post surgery - I took advantage of every minute!

There is a lot they can do to keep you going. I pray they find your best options.
I do not think all hospitals do 6 mo. Scans. They have to have a concern for Metastasis. In my case, there were missteps in my first place of treatment. Mayo has been wonderful.

I had TNBC 3b dx Aug 2020 at age 38, did all treatment through UCLA. Chemo, surgery, radiation, year of xeloda. Did PET/CT post radiation, then again a year after.

Doing bloodwork every 3 months, so I imagine that's tracking a bit of the other areas, and now just CT yearly.

I was diagnosed with ILC that was TNBC in left breast and estrogen positive IDC in the right breast 12/22. I had my treatment at Mayo Rochester. Both tumors were stage 1a with low Ki67 numbers. The TNBC Ki67 was 5% so the oncologist and tumor board at Mayo decided no chemo in my case. I am getting Zometa infusions every 6 months at Mayo for 3 years because Zometa infusions have a benefit of helping to avoid cancer recurrence as another poster mentioned. I also have osteoporosis so there is a benefit of Zometa for me in that way. I had a bilateral mastectomy at Mayo. Since my surgery I see the Nurse Practitioner in the Mayo Breast Cancer Survivor area every 6 months for a check up ( that goes on for 5 years and then you are released to your primary care practitioner). They say to report any concerning symptoms to them. The same day as the check up I receive my Zometa infusion since our home is an 8 hour drive away from Mayo. I was told that to have the best chance to avoid recurrence I should eat a mostly plant based diet, try to avoid sugar as it’s just empty calories, and to eat 7 - 9 fruits and vegetables a day, ( I’m doing it! It took my digestive system a couple of months to get used to all of those vegetables ) Also to eat beans and nuts, wild caught fish and chicken for protein, red meat very sparingly, and to get at least 30 minutes of exercise at least 5 days a week. Also the NP told me that the only healthy oils are olive and avocado. She said to use avocado oil if the temperature you are cooking or baking at is over 375 degrees, otherwise if the cooking temp is lower or of course if you are using it at room temperature you can use olive oil. She said olive oil is not safe for us to eat if it’s cooked at temps over 375 degrees. She also said mushrooms should be cooked and not eaten raw. I told the NP that I was doing a 13 hour intermittent fasting every night because I read online that it was something we could do to avoid recurrence. She said the Breast Cancer Survivor area at Mayo thinks that it’s a good idea to do that 13 hour intermittent fasting as long as you don’t have diabetes, which I don’t. So I do that too. Hope this info will help you and others. Sending Love and wellness wishes to you and all on this board❤️

Thought I remembered everything that they tell us at Mayo in the Breast Cancer Survivor area but I forgot to add one. They say to report and concerning new symptoms to them. That’s important of course.

Gosh here's something else I forgot! A important one! We are told to Limit or avoid alcohol. I'm 71, my memory is not as sharp as it used to be!

Thank you!