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Is anyone with GCA experiencing jaw tightness?

Polymyalgia Rheumatica (PMR) | Last Active: Dec 31, 2023 | Replies (16)
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@curlyqlinda1

I have had PMR for 2 years. The highest dose of prednisone for me has been 10mg. I have tried to wean off slowly 3 different times and when I get down to 2-3 mg I get a flare-up. I’m Experiencing a flare up now went 5mg for 6 days ago and for the past have been experiencing tighting in my right jaw. Talked with my doctor on Friday and he felt I didn’t have Giant Cell Arteritis since I don’t have tenderness in the scalp or headaches. I’m having the worse flare up right now and I am so concern about GCA. What type of pain relievers do your doctors tell you to take? I know advil or Tylenol do absolutely nothing with my pain level right now at 9-10. Sleep was nonexistence this past night.
Thank you for any info. Linda

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Replies to "I have had PMR for 2 years. The highest dose of prednisone for me has been..."
megz | @megz | Dec 27, 2023

How often and by how much do you taper below 5mg? I hear repeatedly that one should reduce by no more than 10% each time, so at 5mg that would be less than .5mg reduction. How have you been doing it?

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susang222 | @susang222 | Dec 28, 2023

I would get some blood work done to see what your levels are. I only had tightening in my jaw, and I have GCA.

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