SIBO diet

Posted by drpepper @drpepper, Jan 30, 2019

Wondering if anyone familiar with SIBO diet knows if the diet is the same for sibo patients with ileocecal valve intact and for those without ileocecal valve....thanks

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Profile picture for gboi @gboi

As a longtime SIBO sufferer and frequent rifaximin (and one time neomycin user), the strategy of "eating food to make the bacteria flourish so you can kill them more readily" makes sense. Both of these antibiotics have the potential to mess up your digestion to begin with but stick with it. I would recommend 2-4 days of "eating normally" (what you consider normal right now) to let the antibiotics do some damage, and then switch to eating more "conventionally" "normally", or even going out of your way to eat specific foods that feed the bacteria, for the rest of the treatment. Maybe you already know which foods set you off the most so you can go and get those, but in my case and in many others, the "gum" additives found in most "processed" foods are the best/worst (guar gum and xanthum gum being the most noteworthy, and then carob bean gum). The product "Tomorrow's Nutrition, Sunfiber, Prebiotic Fiber Supplement for Digestive Health" which you can find on Amazon is pure guar gum, if you don't want to raid the cookie/icecream aisle at your grocery store (or do both since it's the middle of summer).

Good luck, hope you get your Rx filled.

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Thanks! Actually my label-reading has revealed that the gluten free and lactose free foods I’ve been consuming as part of a low FODMAP regimen - such as dairy free yogurt, cream cheese and even some GF carbs like bread and crackers- have xanthum gum and I see it as an ingredient in low FODMAP recipes as well.

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Profile picture for Twocoastsm @marlenec

So how is the cause identified?

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I took a breath test that measures gases you breath out, done in the morning. It’s a home kit my doctor ordered. The results are sent to the doctor.

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Profile picture for Twocoastsm @marlenec

I am about (pending insurance coverage for Xifaxin) to begin two weeks of Xifaxin and Neomycin prescribed my my GI due to SIBO test results. After a month on the low FODMAP diet I was feeling moderately better and had started gentle reintroduction but figured I should suspend that whilst on antibiotics. However, a dietician with whom I’ve consulted suggested “eating normally” whilst on the meds “so that the problematic pathogens are more active and more susceptible to elimination.” Thought I’d try to get some feedback from those of you with experience with SIBO treatment whilst waiting for (fingers crossed) insurance approval. My plan lists it as a Tier 2 drug but apparently the doc has to further justify its use. Been down this rabbit hole before with other situations and am cautiously pessimistic.

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There’s an excellent book SUPER GUT by Dr. William Davis that’s very helpful and informative in understanding what SIBO, foods definitely needed, plus recipes. You can purchase on Amazon.

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Profile picture for Twocoastsm @marlenec

So how is the cause identified?

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I was diagnosed in my gastroenterologist’s office, with a breathing test. He also tested for gluten allergies and dairy.
Not at the same time…
I know there is a home test for SIBO, check with your doctor.

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Profile picture for ch47 @ch47

Great info! Followed the same track as you, but did the fodmap diet along with meds. Had to work the system a little to get the meds.
Did tons of research during this period and learned about leaky gut at that time. Healing leaky gut is sooooo important! After
3-4 months of SIBO diet, started following a leaky gut diet. Ordered several small cookbooks online to know where to begin. Many foods are different from SIBO diet. I really worked on trying to stay away from Sibo triggers and follow the leaky gut diet. What a process!!! My life was focused on healing myself; no one can heal you but you with this type of illness.
Good luck…

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Thanks. Sorry to be lengthy but I have some questions. First question is if you took neomycin did you have any hearing issues. I have very mild tinnitus but my hearing is just fine and I’m concerned after reading black box warnings and some posts on this site. Next I am a little confused about “cause.” I have taken the breath test and it’s positive for SIBO but why I have it other than having had IBS-D for years is a mystery. No anatomical cause as far as I know but I do have diverticulosis and have had bouts of diverticulitis. Finally I have a lot of info on FODMAP regimens as well as the Supergut book and I see foods that are not low FODMAP in the Supergut list - mushrooms for example. I will be working with a dietician who recommended eating some FODMAPS during the antibiotic course and who suggested waiting to start with her until after the course of meds is done.

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Profile picture for Twocoastsm @marlenec

Thanks. Sorry to be lengthy but I have some questions. First question is if you took neomycin did you have any hearing issues. I have very mild tinnitus but my hearing is just fine and I’m concerned after reading black box warnings and some posts on this site. Next I am a little confused about “cause.” I have taken the breath test and it’s positive for SIBO but why I have it other than having had IBS-D for years is a mystery. No anatomical cause as far as I know but I do have diverticulosis and have had bouts of diverticulitis. Finally I have a lot of info on FODMAP regimens as well as the Supergut book and I see foods that are not low FODMAP in the Supergut list - mushrooms for example. I will be working with a dietician who recommended eating some FODMAPS during the antibiotic course and who suggested waiting to start with her until after the course of meds is done.

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My first Gastro rx’d the xifaxin, with no testing and just said SIBO diet, literally that is ALL he said. I did not take neomycin, just xifaxin, and had to fudge symptoms to get that. Insurance would not cover if I complained about my IBS-C…
I did do the diet while taking the Med. Don’t know if right or wrong, I had no guidance…
Switched Gastro after normal colonoscopy and my husband saw his bedside manner, rudeness etc.
Best thing I could have done!!!
Do not have IBS-D. And have had minor tinnitus forever.
As I understand, gut bacteria gets out of order, and travels to the small intestine. ( read the first post in this series, they did a great job explaining what happens. ) SIBO eats the foods that are sugar, or turn into certain sugars once digested. And swell up your upper intestines. And you know the rest…
As to leaky gut, can’t remember exactly how that happens, from swelling? Food? SIBO? You can look that up.
3-4 months on SIBO diet, totally strict, and had just started to introduce the least amount of fodmap foods I was missing, I started eating for leaky gut. Totally different from fodmap. That was interesting…🤣 trying to maintain some fodmap and leaky gut diet at same time.

Fodmap is not forever…

Food and beverage lifestyle changes, probably are forever for me, have helped my health. I will have most everything, but the “really bad” stuff is somewhat limited. It just becomes normal. I found other ways to make tasty food without a whole bulb of garlic 😂 (If someone has a homemade cookie, I’ll eat one and enjoy. If it comes out of a box, forget it. That’s my guide) I don’t want to do this again…

Good luck and great patience!!!

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Profile picture for Twocoastsm @marlenec

I am about (pending insurance coverage for Xifaxin) to begin two weeks of Xifaxin and Neomycin prescribed my my GI due to SIBO test results. After a month on the low FODMAP diet I was feeling moderately better and had started gentle reintroduction but figured I should suspend that whilst on antibiotics. However, a dietician with whom I’ve consulted suggested “eating normally” whilst on the meds “so that the problematic pathogens are more active and more susceptible to elimination.” Thought I’d try to get some feedback from those of you with experience with SIBO treatment whilst waiting for (fingers crossed) insurance approval. My plan lists it as a Tier 2 drug but apparently the doc has to further justify its use. Been down this rabbit hole before with other situations and am cautiously pessimistic.

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Just thinking about this miserable issue…I think it’s one of the hardest things to cure, can only get advice, not really meds for it, and its all up to you to fix! We are so used to docs, meds, hospitals, chiropractors, etc fixing our issues, but this-no instant cure/fix and we are the only ones responsible for the healing…oh well, chin up and forks down! 😘

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Profile picture for Twocoastsm @marlenec

I am about (pending insurance coverage for Xifaxin) to begin two weeks of Xifaxin and Neomycin prescribed my my GI due to SIBO test results. After a month on the low FODMAP diet I was feeling moderately better and had started gentle reintroduction but figured I should suspend that whilst on antibiotics. However, a dietician with whom I’ve consulted suggested “eating normally” whilst on the meds “so that the problematic pathogens are more active and more susceptible to elimination.” Thought I’d try to get some feedback from those of you with experience with SIBO treatment whilst waiting for (fingers crossed) insurance approval. My plan lists it as a Tier 2 drug but apparently the doc has to further justify its use. Been down this rabbit hole before with other situations and am cautiously pessimistic.

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Please help. Any advice hugely apreciated. This is the 4th Christmas in a row of being so ill 🙁
- I generally eat low fod, no sugar, no dairy, no gluten, no histamine. Recently i was feeling good - ate some normal stuff and SIBO came back with a bang.
- I am having bloods, stool test, Colonoscopy and ultrasound done. Hopefully I will find the cause. (I also have MCAS)
- But right now I just need to get the SIBO under control because the headaches, fatigue, stomach pain, nausia etc are out of control. (Plus rectal bleeding (not sure this is from sibo though?..)
- The gastro has given me Refaxamin perscription (under my request). Although he's not a supporter of SIBO. So i'm going it alone; my questions are; QUESTION 1 what to eat during perscription, QUESTION 2 what to eat straight after.
- QUESTION 3 My colonoscopy is on the 19th Dec and I was going to start the tablets today as i've tried to wait but i'm so ill. I don't think the colonoscp will see sibo? QUESTION 4 And hopefully the refax improving things won't effect the colonosc findings?
- QUESTION 5 The refax & the colonoscp will strip the gut. What actions do I take after this?

REPLY
Profile picture for Twocoastsm @marlenec

Thanks. Sorry to be lengthy but I have some questions. First question is if you took neomycin did you have any hearing issues. I have very mild tinnitus but my hearing is just fine and I’m concerned after reading black box warnings and some posts on this site. Next I am a little confused about “cause.” I have taken the breath test and it’s positive for SIBO but why I have it other than having had IBS-D for years is a mystery. No anatomical cause as far as I know but I do have diverticulosis and have had bouts of diverticulitis. Finally I have a lot of info on FODMAP regimens as well as the Supergut book and I see foods that are not low FODMAP in the Supergut list - mushrooms for example. I will be working with a dietician who recommended eating some FODMAPS during the antibiotic course and who suggested waiting to start with her until after the course of meds is done.

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I am having a severe case of SIBO - much worse than other times. I have started on XIFAXIN and on a FODMAP diet . I, too, am noticing some NO foods are not NO foods on another FIDMAP diet. So confusing.

REPLY
Profile picture for Twocoastsm @marlenec

I am about (pending insurance coverage for Xifaxin) to begin two weeks of Xifaxin and Neomycin prescribed my my GI due to SIBO test results. After a month on the low FODMAP diet I was feeling moderately better and had started gentle reintroduction but figured I should suspend that whilst on antibiotics. However, a dietician with whom I’ve consulted suggested “eating normally” whilst on the meds “so that the problematic pathogens are more active and more susceptible to elimination.” Thought I’d try to get some feedback from those of you with experience with SIBO treatment whilst waiting for (fingers crossed) insurance approval. My plan lists it as a Tier 2 drug but apparently the doc has to further justify its use. Been down this rabbit hole before with other situations and am cautiously pessimistic.

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Also have NO IGA and MS. Both of which can be causative. On the Antibiotic but not feeling any better. What FODMAP diet are you adhering to?

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