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Merkel Cell Carcinoma: I'd like to hear from others

Neuroendocrine Tumors (NETs) | Last Active: Oct 20 7:30pm | Replies (133)
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@hopeful33250

@penlandtr1, I can understand that you are concerned that you have to wait until January 8. Whenever there is a cancer diagnosis, waiting is the hardest part! As you live in a small city, I'm wondering how far it is to the nearest Cancer Center of Excellence. At least one consultation, either in-person or a virtual, might benefit you greatly as you seek the best treatment options.

Have you considered getting a second opinion (either virtual or in-person) at well-known cancer center?

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Replies to "@penlandtr1, I can understand that you are concerned that you have to wait until January 8...."
gordy6898p | @gordy6898p | Dec 28, 2023

Latest PET scan technology.....

I have bladder cancer, and scheduled for Chemo round #6 on January 17.

So far, I've had PET, PET/MRI, and PET/CT scans.

On January 5 I'm scheduled for the latest in technology, a PET/??? scan.

Depending upon risk factors as the results of that scan, they will determine whether to start radiation treatments, or go with bladder/prostate removal surgery.

I have a rare form of bladder cancer. Nationwide, an average of only 300 new cases are detected each year.

The VA hospital in Madison, WI averages only 1 case each year.

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