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Continuing “Un-explained Event” – Urethra Pain
Men's Health | Last Active: Jan 18 3:31pm | Replies (13)Comment receiving replies
Lostnthought,
Reading your description sounds so familiar and I can not provide an easy answer however feel compelled to share a similar experience. For me these symptoms you describe have been there for just over 2 years post prostatectomy surgery for prostate cancer.
Many tests and doctors’ visits and still the condition persists.
I’m 67 years of age now. I have had 2 cystoscopies each showing some scarring but my bladder empties completely on PVR tests. Infectious disease Docs have tested me for everything that can cause uti and found nothing. Mayo urology suspected lichen sclerosis and dermatologists have said it’s nothing.I did 10 weeks of intra urethral clobetasol, a strong steroid(Mayo urology prescribed)which did help a little although it was torturous. My new urologist at home says he does not suspect lichen sclerosis but wants to continue monitoring me for the scarring and said my symptoms are more in line with stricture problems. You say you have no scarring so that is ruled out. I’m not convinced that my scarring described as mostly mild is what is causing my symptoms.
The latest suggestion given(Mayo) was cystoscopy with biopsies to rule out urethral cancer “ or anything more sinister “ I am very hesitant to agree to that torture so like you I am hoping and praying for healing as there are times when it seems considerably better mostly early in a day and then worsens by days end. Definitely do not give up and 2 or 3 opinions can’t hurt. I hope you find an answer or The Great Physician heals you in time. Please let me know if you figure it out and thanks for sharing your experience,
Brice
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I have always feared being that anomaly suffering from something, where tests and scans brought no conclusive results yet the pain was persistent. Medicine has come a long way, but seems very barberic in a trial and error sense. Still a lot of things about the body that are un-known. If you are having pain that cannot be determined by the usual methods, you become atypical.
I did not have a good experience with my cystoscopy. I was already fearful to have the procedure performed with the pain I was already experiencing. I opted to include nitrous oxide so there would be no pain. I am not sure if the nurse was new or not, but she turned on the machine, gave no instructions, and then stood there looking at her phone. She then asked if I was ready, after a few minutes, I explained that I was waiting on you to instruct me. I began to take the nitrous, but I am not sure how long I was under. It seemed as though the doctor walked in shortly after, but I am not sure if it was the effects of the gas that made the time go buy. It was really painful for me, the doctor said when he reached the pelvic muscle, it was extremely tight, which would make sense because of the normal pain, but it possibly could be because I was not given enough nitrous. I will definitely be looking for a second opinion. I am thinking of one doctor in the Medical Center. I really appreciate the feedback. I hope to update on my progress and any new treatments that I find.