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@melzino

Hi everyone,
I, too, am without a hip on my right side. My saga goes back to 1995 when I was diagnosed with avascular necrosis and underwent a core decompression on my right hip. I made it to 1999 before I had my first THR. I did well after that & was able to continue working as an RN nursing instructor.
A revision was needed in the spring of 2017 resulting in a hematoma and a great deal of drainage & pain from the pressure of fluid buildup. One month later I went back for an incision & drainage due to the hematoma. The pain continued and I was using forearm crutches to work. The pain became too much to bare/bear & another total revision was done in Dec. 2017. My surgeon was pretty certain I had an infection, but nothing showed up in the cultures. He had me take an oral antibiotic daily just to cover the possibility of infection. This went well until I developed an oral thrush overgrowth that was difficult to manage successfully & I stopped the antibiotic in June 2018. Within 6 weeks I had a sudden onset of hip pain & significant difficulty tolerating weight on my right leg. Also my blood inflammatory markers, sed rate & CRP, were extremely high. Back to the ortho surgeon I went. The fluid obtained by a hip aspiration grew a bacterial organism that is normally present on the skin. This was believed to have developed when I had the hematoma & serous drainage in spring of 2017. Once I stopped the oral antibiotic the infection flourished causing loosening of my prosthesis. Again I had surgery, in Aug. of 2018, removing my prosthesis and placing an antibiotic spacer followed by 6 weeks of IV antibiotics. Apparently my femur fractured when the femoral component of the prosthesis was removed. I had horrific nerve pain in my thigh from the fracture.
This was a very dark & painful period for me. I was cleared to have a new prosthesis placed in Nov. 2018. That went well, but was complicated by severe anemia from blood loss & a flare up of my autoimmune disorder. I retired from my position as a Nursing Professor at the end of 2018. I did well for 5 years. In Aug of 2023 I has some swelling of my right thigh, low grade fevers & night sweats. Over the course of 4-5 days putting weight on my right leg became progressively more painful. On a Sat evening, I went to the ER. Labs, xrays & a CT scan indicated an abcess in my thigh. I was started on IV antibiotics and was transferred to the hospital when a bed became available about 24 hours later. My surgeon told me he would probably remove my prosthesis, both femoral & acetabular portions. Depending on the extent of the infection he would decide if an antibiotic spacer was an appropriate intervention. At this time he informed me of the possibility that I might not be able to have another replacement in the future. I could not imagine that this could occur.
After the surgery he told me he wasn't able to use a spacer. That my femur was brittle & there wasn't sufficient bone stock to support either component of the prosthesis. That was Aug 7th 2023. I've now been 5 months without a hip spending most of my time in the wheelchair. The leg length discrepancy makes it very difficult to use a walker or crutches. I have a specialist coming to my home tomorrow to assess my leg length issue & make recommendations for a lift on my right shoe. Maybe once I have the lift, I'll be able to make some progress using the walker.
Sorry to be so long winded, but it has been a long & winding road to get to this point. I'm grateful I was able to work for 23 years since this all began. I'm also grateful that I am retired and am supported/assisted by my husband of 43 years. As a side note, my husband had a heart attack 4 weeks ago, but is doing very well & back to his full activity level.

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Replies to "Hi everyone, I, too, am without a hip on my right side. My saga goes back..."

This is a copy of my thread from a few pages back if any of the info can be helpful to you.....I am also a retired nurse.......I'm 71, live in Michigan and almost 2 years now without a hip due to severe infection in bone and muscles. I get around with a walker in the house and crutches when I go out. I can go up & down stairs with one crutch and a handrail. I can walk a short distance in the house with just one crutch or a cane, but I wouldn't trust myself to do it outside. I ride an upright exercise bike daily and also bought a tricycle last summer and road that. I did have an issue in the fall where I tore my meniscus in my good leg along with a stress fracture in that knee also which has set me back some. However, I am not giving up and continue to do my daily exercises daily for about an hour. That is a lifelong commitment to staying as strong as possible. I know it's not fun and gets boring, but it must be done to make the best of it. My leg is about 3 inches shorter and my husband has glued bottoms of soles I've cut off on one shoe to another to equal out my legs pretty good. That makes a big difference when walking so you don't hurt in other areas. He's become a good cobbler making my shoes, which is good because to have them make professionally, it costs about $200 for one shoe! There is also a Facebook forum page called "Hip Replacement Complication Forum" which has helped me a lot. If you are on Facebook, you may want to join that too. I have struggled with weight gain since my surgery also and about 25 pounds overweight and find it very difficult to lose weight but I'm trying. I do attempt some chair yoga from time to time, but haven't gotten into a habit of it yet. I was very active before all this happened so it has been difficult, but results are attainable if you keep at it. I just use Tylenol and Mobic (NSAID) for my pain. I'm on antibiotics for the rest of my life for "chronic Osteomyelitis" of femur and pelvis. (Infection in the bone) I pray you can get your pain under control so you can continue with exercises. Any exercises to strengthen your core muscles, Quadriceps and gluteal muscles are what needs to be done. I got lots of exercises to do after my surgery and had home care and Physical Therapy for 6 weeks. Those are what I still do as well as others I've found online. Everyone progresses at their own pace so don't feel frustrated. Just keep trying and do the best you can. I too have hopes of just walking with a cane or even one crutch some day, but I'm not sure it will ever happen for me, especially if I'm going to keep injuring my good leg/knee trying! Defintely not worth that. Wishing you all the best and feel free to send me a private message through this Mayo site if you want to….prayers for wellness…….Cindy