You are so right!!! I found out about a year ago that I have wild type ATTR ( Amyloidosis). It took 2 years for my many doctors to figure it out. It is one of the most under diagnosed disease there is !! The type I have is the rarest of them all, so I'm told. I , maybe have another 2 to 3 years to live if I'm lucky. I'm 67 years old which also makes it worse. I just found out that my 71 year old brother has ALS and he maybe has a couple of years to live. I will never have grandchildren either! Good luck and hang in there the best you can. Ignore people like her who has this high and mighty opinion about her medical colleagues . If they can't figure it out they act like we're making it up or we just have to live with it.