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My sister was on Red Yeast Rice for a few yaers and was just diagnosed with necrotizing myositis. She started having leg pain and within a few weeks couldnt even walk up stairs. She is in infusion therapy now and seems to be getting better. I was on red yeast rice for 3 years and in Sept of 2017 developed PMR and GCA. Almost lost my vision. Went thru hell of high dosage prednisone and then Actemra. I hit "remission" in November of 2021 finally. My sister and I are being tested to see if statins are not a viable medication for our high cholesterol.

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@iaff801
I have Ankylosing spondylitis, I am on immunotherapy for it. I also have high cholesterol but I'm hesitant to take a statin for it. I have been eating well but can't seem to lower it, it keeps going higher. My question is is it safe to take supplements like berberine and red yeast rice or curcumin while on immunotherapy?? Does anyone have experience with this situation/problem?