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DiscussionWhat is your quality of life after a partial maxillectomy?
Head & Neck Cancer | Last Active: Feb 5 7:14am | Replies (24)Comment receiving replies
Replies to "I have lots of trouble eating and swallowing. I will have a swallow test on January..."
I went through the same or similar surgery. Two weeks into radiation, I couldn’t eat anything. I lived on Boost rich chocolate 360 calories each. To keep my calorie count up, I drank 4-5 a day. It was the only flavor I could tolerate, and I tried others. It depends on what flavor tastes good to you. My surgeon and oncologist said you can live on them, as they have everything you need. I did not need a feeding tube. You won’t either if you can get enough calories. You will get better. It’s a very slow process but it will eventually go away. As you start eating more food, you can decrease the number of Boost you drink. I could eat flavored cream of wheat, fluffy scrambled eggs, applesauce, ice cream, smoothies with anything in them that sounded good-especially peanut butter in my smoothie-extra calories. I couldn’t tolerate coffee for a long time but I could drink tea with honey. I kept a calorie count and it worked. Don’t get discouraged, please. Try to keep yourself busy so you don’t think about it all the time. I live in Florida so I would go outside and work with flowers and other plants as much as I could. It gave me a more positive attitude, which I believe, helps with healing. I hope you have something that you can do that will help you.
Hi @rosie100 Welcome to the Head and Neck group. There are doctors and treatments for swallowing issues but sometimes in the worse case a PEG tube is the only option. Not to say you can’t ever eat after that, usually you can or at least drink fluids. This all depends on the specific situation.
See how it goes January 4th and see what help is available. This cancer stuff sure is fun isn’t it.
I’m always the last to leave the table after I figured out how to eat and swallow carefully. It took a few years. Can you keep me posted as to your results?