← Return to Chronic Pain members - Welcome, please introduce yourself

Discussion

Chronic Pain members - Welcome, please introduce yourself

Chronic Pain | Last Active: 17 hours ago | Replies (7067)
Comment receiving replies
@karen00

@faithwalker007 Hi Renee, I appreciate you writing, I have fibromyalgia and I know how hard it is, even with our faith. I love what you said about honoring the ones before us. I’ve never thought of it that way and there have been times I wanted to throw it all away. I cannot stand and walk gingerly with a walker. Tomorrow I go to a new pain doctor and I’m praying for help. Nice to meet you....Karen

Jump to this post

Replies to "@faithwalker007 Hi Renee, I appreciate you writing, I have fibromyalgia and I know how hard it..."
Faithwalker007 (Renee) | @faithwalker007 | Sep 5, 2019

Thank you so much for welcoming me into the forum. I've never been good at this kind of thing. I will say that it is easier for me to talk about this stuff than my husband. Maybe it's because he has never been officially diagnosed with anything, in particular, that is causing his excruciating pain every day other than his repetitive surgeries. No one will even give him a reason why he is always needing surgeries over and over again. I don't blame him for being frustrated and angry at the medical world. I never gave up until I got an answer. It wasn't one I liked...CRPS Type 2 isn't something anyone wants to hear. Who wants to hear they have the most painful condition on the planet? Right?
But James (my husband) has been suffering for eight years and no doctor (and their has been many) has a clue why. He has neuropathy in his feet (no diabetes), carpal tunnel in both hands, shoulders that pop in and out of place, hip and back pain, severe leg pain...the list goes on and on. My heart breaks for him just as his breaks for me.
Our life is the nightmare that nobody wants.
We don't fight it alone, but believe me, I wish he had answers for at least a part of his struggle to survive.

Switching to a new pain doctor is a scary experience and I will be praying for you, Karen. I want to do it as well. Right now, we have to travel 2 and 1/2 hours one way to mine every month and the provider I see has no clue about CRPS. She sees me for 10 minutes and asks ME what I want to do. She tried to give me oral Ketamine last month because it "worked with a diabetic neuropathy patient." She said she'd heard Ketamine was helpful with CRPS but to do my own research and let her know if I wanted to try it. I called my neurologist and he didn't recommend oral at the dose she wanted to prescribe. He said that for my condition and pain level only IV infusion in a clinical setting over a period of two weeks would be effective due to my migraine history and epilepsy.

Please keep me posted how it goes with your appointment! I'm praying. Thanks for the contact.
Renee

VIEW AND REPLY