← Return to Husband diagnosed with tonsil cancer: looking for tips and support

Discussion
Comment receiving replies
@beenthere22

My 67 year old husband was diagnosed with stage 2 tonsil cancer in August, 2022. It was an HPV 16 based cancer so it was very treatable. He had the same treatment plan you mentioned—35 radiation sessions and chemo once a week for seven weeks.

What we learned: do what the doctors tell you to do. For example, get a port put in his chest to make chemo, blood tests and hydration easier. My husband had supplemental hydration sessions three times a week through his port. It hurt a lot to swallow and became impossible after four weeks of treatment. When he lost 15 pounds, they recommended a feeding tube. It sounds scary but it was the best thing he did because he was able to receive badly needed nutrition to help him heal. You may have to try a couple different formulas to find what works best for him. As soon as we got him properly hydrated and fed, he looked so much better and he recovered well. He lost thirty pounds total but has gained some of it back. He had the stomach tube for six weeks. He developed mucositis by the end of treatment. Get him a suction machine to help with this. Our ordeal was about six months from diagnosis to receiving a “no cancer found result” on his PET scan. Permanent side effects - He lost part of his ability to taste food and his salivary glands did not come back. And he cannot grow a full face beard - just a Van Dyke mustache and small chin beard.
He feels this is a small price to pay for being cancer free.

Every two months his ENT scopes his throat for any thing suspicious and his cancer center also follows him closely with scans, MRIs and blood tests.

In 2023, we did three major trips to Panama, Europe, and Australia. So there is life after cancer.

Hang in there, your husband will recover. Take care of yourself.

Jump to this post


Replies to "My 67 year old husband was diagnosed with stage 2 tonsil cancer in August, 2022. It..."

Thanks for all that. This is just starting so we’re both scared. Like I said in post he never been sick, not even a headache so he’s not use to having anything go wrong, so it’s really hard. This is going to be a long winter, we’re in Michigan.

What did he use for sore mouth/ throat to eat better. Some are numbing but wonder how good that is when you eat as you could bit your tongue. Anything that helped him?

How long did it take to feel a little better once treatment was ended for him?

Was it still hard to eat and swallow a couple weeks after treatment was over?
I just wondered when his mouth wouldn’t be so dry, he rinses with baking soda and salt throughout the day but doesn’t really help, he has to get up in the night to rinse also.