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Chronic Pain members - Welcome, please introduce yourself

Chronic Pain | Last Active: 19 hours ago | Replies (7049)

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@faithwalker007

Hello, my name is Renee B (Faithwalker007). I live in Wyoming and was diagnosed with Complex Regional Pain Syndrome Type 2 (Causalgia) last year. I developed CRPS due to my right knee replacement in May of 2017 when somehow, the surgeons permanently damaged my lumbosacral plexus. It took nine doctors, and a long time before someone finally figured why I hurt so bad in my back and right leg and foot, AND couldn't lift my foot (drop foot in my right foot) besides simply telling me, "it's in your head," or "give it some time, it will go away."
Even now, after insertion of a DRG Spinal Stimulator that takes care of only 10-15% of the pain, if that, and having to take a crapload daily dose of narcotics, my life is only a shell of what it used to be. I can't drive, stand, sit (for any length of time), cook, clean, hunt, fish, camp . . . well, you get the point. In fact, I will be migrating to a mobility scooter soon and adjusting the training of my Service Dog-to-be to include wheelchair duties.
This would not be as bad to cope with as it seems if my husband was not already officially disabled with Traumatic Chronic Pain Syndrome. He's had a total of 38 surgeries with most of his adult procedures on soft tissue and joint repair. He needs at least three or four more and is suffering intense pain while he struggles to provide care for me, his wife who was once the breadwinner of our home.

We are Christians and continue to fight on with the strength of the Lord within us and around us. I won't sugarcoat our lives though. It's hard. Very hard. Each day, week, sometimes, each minute is difficult, but we will keep fighting. Why? Because we will not give up and let the pain win the war. Many others in the state, country... world suffer worse than we possibly can do each day. Many will die before we will lay our heads on our pillows tonight. The least we can do is honor them by not surrendering before our time is due.

Do I have questions? Yes. Will I answer some if I can? Absolutely. It's nice to meet you and all walking, crawling, rolling, lying along this path. It's good to know I'm (we're) not alone. 🙂

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Replies to "Hello, my name is Renee B (Faithwalker007). I live in Wyoming and was diagnosed with Complex..."

Hello @faithwalker007, welcome to Connect. I wanted to share a discussion with you that you may find worth your time to look through and introduce yourself in as well, "CRPS," https://connect.mayoclinic.org/discussion/crps-2/. This discussion is focused on members living with and coping with CRPS.

@faithwalker007 Welcome, Renee. You and your husband have been dealt more than your share of infirmity! It's sometimes hard to understand why God doesn't intervene with a miraculous healing, but I agree with you that putting our faith in God who loves us and cares deeply about us and will never abandon us goes a long way toward making life worth living. I remember that when I was at the lowest point in my life, knowing that God never abandons His children was enough to sustain me over the years of recovery that followed. It isn't important to me to FEEL His presence, because I know that His Spirit is within me, giving comfort, guidance, counsel and hope. Sometimes those things come through other people. That's one reason being connected with other people is a wise idea.

I pray God's blessings on you and your husband.

Jim

@faithwalker007 Hi Renee, I appreciate you writing, I have fibromyalgia and I know how hard it is, even with our faith. I love what you said about honoring the ones before us. I’ve never thought of it that way and there have been times I wanted to throw it all away. I cannot stand and walk gingerly with a walker. Tomorrow I go to a new pain doctor and I’m praying for help. Nice to meet you....Karen