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Chronic Pain members - Welcome, please introduce yourself

Chronic Pain | Last Active: 19 hours ago | Replies (7049)

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@elmay

Hello. I am a 71 year old woman who has dealt with fibromyalgia for most of my adult life. Fortunately, I have a physician who acknowledges and validates the pain. He has worked with me through the last 10 years to find the right level of medications without having me take more than I should. He has guided me toward appropriate exercise, yoga, massage, cognitive changes, and relaxation. In October, he wants me to take a class about dealing with chronic pain ( which the Mayo system is teaching).

Fibro is not my only challenge. I have had a headache since September of 2014. Botox has helped a little, but it never totally goes away. I have Sjogren’s and Raynaud’s syndromes and take Plaquenil for a high CL level. Last fall I began to lose my sense of taste. Now my tongue stings around the edges. I have GERD. My balance has gradually deteriorated. Neuropathy in my feet has certainly not helped that problem.

In spite of it all, I feel pretty lucky because I’m maintaining some quality of life. Lots of days are not so good, but then some good ones come along, and they really give me hope.

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Replies to "Hello. I am a 71 year old woman who has dealt with fibromyalgia for most of..."

@elmay Hi elmay! What an awesome attitude! I enjoyed your post, and look forward to “talking” with you more. I also have fibro and have rheumatoid arthritis. The pain greatly affects my life and I’m working on improvements. I’m 62 today! ........Karen

I know that self-diagnosis is a dangerous thing, but I also know that those of us who suffer with unknown pain keep searching for the answer. Recently I read quite a lot about CSF Leakage, and I truly believe that is what is going on for me. Does anyone have first hand experience with cerebral spinal fluid leakage? I would love to hear from you about what symptoms brought you to the diagnosis. The more I read about it the more I find I have almost all the symptoms. I have an appointment with a neurologist on the 21st. I hope I can deal with the non-stop headache till then. I also hope he doesn't laugh at me for trying to be my own doctor. Please let me know what you know about this problem. Thanks