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@drummergirl

Diana- I read your reply with great interest. I feel that I had very little info on my TNBC tumor compared to many others. I read everything I could get my hands on. I knew that androgen was a possibility, but how did you get tested for it and did it inform your treatment?

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Replies to "Diana- I read your reply with great interest. I feel that I had very little info..."

I did want to add an additional comment about triple negative cancer. As it has been explained to me, it is a term coined by the pharmaceutical companies. It is a catch all phrase based on estrogen, progesterone, and HER2 testing. Basically, we have approved pharmaceuticals to treat those three targets. So that is all that we currently test for routinely. And luckily, most breast cancers will fall under one of these categories. But, if you don't have one of those receptors, it became common to call your cancer "triple negative". And again, not all TNBC is the same as I described above. And apocrine triple negative is getting a lot of research attention right now because apocrine cancers are often androgen receptor positive. There are studies looking at using some of the prostate cancer drugs to treat apocrine TNBC (prostate cancer is androgen receptor positive as well). So there is hope for treatments in the near future that do not currently exist today. This will improve the prognosis of these cancers.

@drummergirl Wow! Do I ever feel the same way!!! Now I have lots of questions and need to go back to the pathology report!!!