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DiscussionMerkel Cell Carcinoma: I'd like to hear from others
Neuroendocrine Tumors (NETs) | Last Active: Oct 20 7:30pm | Replies (133)Comment receiving replies
Replies to "I'm finding it hard to find more current information about merkel cell carcinoma. It's traveling from..."
Welcome to a club we had rather not belong to. I was diagnosed with Merkel under my left eye last July. I have had surgery to remove the cancer and two lymph nodes (one of which tested positive for Merkel). Currently I have five immunotherapy treatments completed and thirteen radiation sessions. I'm hopeful since the cancer was caught very early everything will be ok. If you would like to share information or to ask any questions, please feel free to do so.
I am an 81 year old male married sixty two years and overall in fairly good physical condition.
Hello @penlandtr1 and welcome to Mayo Connect. I see that you are interested in connecting with others who have Merkel Cell Carcinoma and that @lbrockme and @rogermcintire have responded to you already. On Connect we have other discussion groups on the topic of Merkel Cell. If you would like to meet others on this journey, I'd encourage to read posts in the following discussion group:
https://connect.mayoclinic.org/discussion/merkel-cell-carcinoma-1/
On Mayo's/merkel-cell-carcinoma-1/ website, I found this information:
–Merkel Cell Carcinoma
https://www.mayoclinic.org/diseases-conditions/merkel-cell-carcinoma/symptoms-causes/syc-20351030
I would like to invite @dreams and @redneckchic501 to also share their experiences with you.
What type of treatment is being planning at this point?
I liv s in a small city in the Pacific NW. about 50 miles from Seattle. So far all that has been done is the ultrasound biopsy of the lymphnodes that have formed a little mass under my right arm. I'm not scheduled to see another doctor from Franciscan cancer center until the 8th of January. It doesn't feel right to wait that long but I'm not sure what more I can do at this point.
Try searching this Mayo connect site . The search function at the top showed me a previous group and comments.
I hope you find done helpful information soon. Praying for your next steps