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Any one been diagnosed with Primary Hyperparathyroidism

Diabetes & Endocrine System | Last Active: Feb 17 6:08am | Replies (54)
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@katya12

Thank you for your reply. I am currently seeing the assistant director of endocrinology at the University of Iowa. I thought I was seeing the best person, but I think she is too busy. I have never been told anything about parathyroids. I know about them. I was told that I have an enlarged thyroid, and I have two nodules in my thyroid that are not cancerous. I am going to have another scan in February to see if the nodules have grown.

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Replies to "Thank you for your reply. I am currently seeing the assistant director of endocrinology at the..."
monstermama36 | @monstermama36 | Jan 1 8:39am

There is a hyperparathyroidism group on FB with a surgeon recommendation file. My adenoma, found with Sestambi and 4D scans, was in my upper chest below my collarbone so opted for a general surgeon with a specialization in endocrine surgery rather than an ENT. We had a thoracic surgeon on standby if the surgeon couldn’t remove through a neck incision but he spent 3 hours with me tipped in beyond trendelenberg to get Larry the Bone Sucking Tumor out. Get recommendations, do online research, ask how many parathyroidectomy surgeries they do per week, month, year. Make sure intraoperative PTH levels will be taken. Make sure the surgeon will commit to a 4 gland exploratory as those scans are only 50% accurate. Mayo and The Norman Parathyroid Center are highly recommended options.

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