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DiscussionAny one been diagnosed with Primary Hyperparathyroidism
Diabetes & Endocrine System | Last Active: Feb 17 6:08am | Replies (54)Comment receiving replies
Replies to "Thank you for your reply. I am currently seeing the assistant director of endocrinology at the..."
There is a hyperparathyroidism group on FB with a surgeon recommendation file. My adenoma, found with Sestambi and 4D scans, was in my upper chest below my collarbone so opted for a general surgeon with a specialization in endocrine surgery rather than an ENT. We had a thoracic surgeon on standby if the surgeon couldn’t remove through a neck incision but he spent 3 hours with me tipped in beyond trendelenberg to get Larry the Bone Sucking Tumor out. Get recommendations, do online research, ask how many parathyroidectomy surgeries they do per week, month, year. Make sure intraoperative PTH levels will be taken. Make sure the surgeon will commit to a 4 gland exploratory as those scans are only 50% accurate. Mayo and The Norman Parathyroid Center are highly recommended options.