Dosage Adjustments On Tymlos Pen

@jmla yay! My spine was -3.6 and femur neck -4.1. But I have 7 spinal fractures, three from trauma in 2006 and the rest osteoporotic.

Blood tests after 18 months seemed to show my Tymlos was no longer doing much but docs kept me on for 26 months while we figured out what to do next, while I recovered from COVID and so on and docs said it was at least maintaining me. I wish I could just stay on it! If I cannot tolerate Evenity I might ask! Forteo is now approved for more than 2 years.... Good luck with your doses!!

Thanks. Mine was about the same (spine). So far I have osteopenia in my total hip and femoral neck (and wrists). Hoping to keep it that way. If Tymlos stops working for me, I’ll probably stop and then go back on it at some point later. I feel the same as you. I’d like to just take it for ever. Or at least on and off for as long as possible. Perhaps research will allow that some day. I’m grateful this is available at all. Good luck. Please keep us posted on what’s next for you.

Evenity tomorrow! Nervous. I might do 4 months and then 20% Reclast to see if I can tolerate. I'll post about how things go!

Best wishes to you. I hope evenity is well tolerated for you Windyshores.

I did it! I was having some heart issues last night- very brief tachycardia and maybe afib- so was extra nervous.

I had a "reaction" (not a side effect) with pretty strong pressure on my chest and wooziness. This has happened before. I am probably sensitive to the polysorbate 20 in the injections. I had the injections in my tummy.

After an hour or so I am fine. Happy I did it! I made an appointment for late January and early March. Onward!

Windyshores,
that is great! Hope you have further success with the Evenity. I just did my 5th injection and so far all is good.

best to you windyshores. you’ve been so helpful to me. I completed 12 evenity in November without issue and now have completed 2 full months of weekly alendronate which I did not think I would tolerate at all. I just take it early on Friday mornings and wait about 45
minutes for my regular breakfast. I stay upright and kind of dance around to get it down and so far no real problems. I was so sure i was going to have GI issues and I haven’t yet. I like that I can stop it if I want. I’m hoping to have a CTX in Mid January and then have a talk with endo. I do t want to take it more than a year. May even pull my whole story together and
consult with Dr McCormick

Just to be clear:

"I did it! I was having some heart issues last night- very brief tachycardia and maybe afib- so was extra nervous."

The tachycardia and afib happened the night BEFORE Evenity!!!!

Thank goodness you feel better. You are a very strong woman. I bet it was scary for the first injection. I hope and pray all goes well and it works great for you.

Good luck!!