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Chronic Pain members - Welcome, please introduce yourself

Chronic Pain | Last Active: 4 days ago | Replies (6794)
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@kimspr3

Hi Ginger, I don't understand why they have no information, guidance for you. May I try with your permission? name of you disease? I feel so bad.

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Replies to "Hi Ginger, I don't understand why they have no information, guidance for you. May I try..."
Ginger, Volunteer Mentor | @gingerw | Aug 27, 2019

@kimspr3 It is not curable. Patients are in other countries [they think I am the only one in U.S.], and are far and few between. There is no impetus to do any research. It is an orphan disease. There are a few research papers only. I'm not worried. I maintain my kidney dis-order with good diet and mindful living.
Type III collagenofibrotic glomerulopathy
Ginger

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