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For those DX with TNBC and completed treatment: What’s your follow up?
Breast Cancer | Last Active: Dec 28, 2023 | Replies (9)Comment receiving replies
I am doing my follow up care at Mayo Jax after wrong treatment and punctured lung at another hospital. I do get regular PET/CT every six months for two years. I will be getting the last one soon. Then scans every 6 months.
I was stage I-II no lymph node involvement.
I take a lipophilic statin (Lovastatin) , as MD Anderson is studying positive results for prevention of TNBC reoccurrence. I take turmeric drink green tea and eat Blueberries every day. So little to be done for TNBC. Interested in whether you do anything for slowing it down.
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Greetings. I was TBNC Stage 3 at time of DX April 21. I did ACT chemo summer of 21, SMX Nov 21, 25 rounds of radiation Jan/Feb 22, 5 months of capacetabine (oral) and then a Clinical Trial for 9 months (Ifetroban) ended August 23. Long haul for sure. I see the Onco every six months and surgeon every six months. At my two year surgical appointment I told her about some new pain that did not seem to be orthopedic. She ordered a CT scan and it came back with mets to liver, bone, lymph system. (Vanderbilt does NOT do routine scans). I have a liver BX scheduled for Dec 29 (took three weeks to get the appointment) and had specialized labs drawn (Tempus) a week ago. The Onco is looked to see if the spread to the liver is TNBC or a new one. After the liver bx he will give me my options to ponder. Needless to say this has been a very emotional holiday. I did everything I could to keep it from coming back. I wish that I had begged for routine scans as it wold have caught the spread earlier widening my options. I got two years post surgery - I took advantage of every minute!