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@plav

Two endocrinologists told me that. They said there are four osteoporosis meds you can’t ever go off of, and that’s one of them.

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Replies to "Two endocrinologists told me that. They said there are four osteoporosis meds you can’t ever go..."

@plav what they told you is not true, it is an oversimpification. Maybe your docs don't want to go into details? If you go off Prolia, there is risk of an abrupt drop in bone density and risk of fracture. In fact I read that even if there isn't a significant drop, the fracture risk still goes up. I believe I read that in McCormick's book "Great Bones."

As I wrote before, you can transition to Reclast but the timing is very important to get right. Too early and the Reclast doesn't work and too late, fracture risk has already gone up. Docs I know (and McCormick) can use the CTX blood test to determine the best timing.

Maybe you can go back and discuss this with your doc(s).

plav, that's interesting. I'm wondering which four.
Prolia would have to be one, but even Prolia you can't stay on forever. All of these drugs should be transitioned after a different number of years.
You are right to insist upon individualized treatment. One size fits all is disturbing enough in clothing. It requires more effort on the part of our physicians, more testing and more knowlege.