I feel incredibly hopeless.
I’ve lost 4 years of my life that I can never get back due to this “illness” that nobody can seem to figure out. Like many of you out there, I’ve encountered some of the coldest & most dismissive doctors out there. The lack of compassion from some of these physicians has truly bothered me. I’ve gotten the ole “barely do any actual research & slap the fibromyalgia diagnosis on it to get her out of my office” shtick more times than I’d like to admit. I’m exhausted. I can’t afford to go to a fancy medical center. I live in Arkansas & we have very few specialists & they all have pretty poor reviews. So I’ll put my symptoms out there in hopes someone runs across this one day & is like “oh hey, I know exactly what that is!”
I want to just preface that I’m in no way nor have I ever been a hypochondriac. I don’t sit & dwell on my health. The only reason I’m so concerned right now is because my health got too bad to ignore.
I’m 32 years old. Female. All of these symptoms began almost 4 years ago out of the blue. No known trigger, I was happy, healthy, very active & fit. It’s literally like I woke up one day & felt like crap & it never went away. Its left me bedridden most days. Had to quit working as an Esthetician & work from home. I’m truly MISERABLE.
SYMPTOMS:
-Debilitating Fatigue *Severe
-Brain Fog *Severe
-Memory loss
-Cognitive impairment *Severe
-Facial flushing *Severe
-Zero energy
-Feeling like I’m wearing a necklace that is too tight & can hear the blood rushing in my ears
-Body feels like it’s vibrating when I lay down sometimes
-Excessive sweating
-Exercise Intolerance
-Always hot *Any sort of physical exertion makes me feel like I’m going to overheat or pass out. ie. washing dishes, fixing my hair, showering, etc.
-Dry skin on entire body *Severe
-Dry eye syndrome *Severe
-Dry mouth
-Dry sinuses with super sticky snot
Basically my entire body is dry from the inside out.
-Keratosis Pilaris on lower legs caused by the dry skin
-Frequent canker sores
-High blood pressure
-High cholesterol
-Raynaud’s Syndrome *Toes & fingers. Mother also has this condition.
-Livedo reticularis on limbs when cold
-Rapid weight gain *About 20lbs in 1 year.
-Depression *This is a symptom, NOT the cause.
-Chronic pain in joints
-Frequent severe headaches on one side of the head, towards the front
-Fingers or feet swell & turn red/warm
-Ridged, brittle fingernails
-Red vertical line down big toenail
-Hair loss
-Frequent infections
-Gum Disease
-Rapid tooth decay
-Dark scarring
-Heart palpitations
-Insomnia *Severe
-Arthritis *Knees, hips, spine, ankles
-Urine Hesitancy
-Heat intolerance
-Either no period or it’s extremely light and only lasts about 1 day
-Depleted Estrogen & Progesterone *They were brought up with BC pills but no idea WHY they were depleted
-Constant crying
-Constipation *I have ibs-c but the c has gotten significantly worse.
-Tachycardia *This is constant. Mother also has this condition.
-Cravings for carbs & sweets constantly
-Nose runs with physical exertion
-Enlarged lymph nodes in armpits that get bigger & very sore around the time of my period even if I don’t actually have my period
All of the labs that have been done are because I requested them. All labs have come back normal aside from the high cholesterol & the high blood cortisol. The saliva & 24 hour urine cortisol tests were normal.
I have a thyroid nodule that they said just needs to be monitored annually.
Brain scan was normal.
I’ve had the normal blood work for thyroid & ANA which were normal.
I honestly feel like I probably have a fairly normal condition but I can’t get a doctor to give me enough time during the visit to actually get anywhere and I’m sick of being told it’s probably just fibromyalgia or in my head. ITS NOT.
H E L P 🏳️
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You don't want to add drug addiction to your problems. Have you gone to a pain management specialist?
To @morganjane, see the HRSA community health centers as a possible source of care (https://bphc.hrsa.gov/about-health-centers).
To @cekkk, I do not think that it is an accurate statement that government has a goal to destroy medicine. I am fairly old myself (mid-60s) and that is not what I have seen. For an even longer historical perspective I can recommend a book called "The Book of Charlie: Wisdom from the Remarkable American Life of a 109-Year-Old-Man," by David Von Drehle. He was a doctor in the 1920s and beyond. (Your public library may have it.) Among other things, he saw how medicine had changed since then.
It is also helpful to have a global perspective to see how other countries handle medical care. The British, for example, have the National Health Service.
I can assure you that no one in the civil service gets up in the morning and thinks about anything other than how to do a good job for the American people. What the political appointees are thinking, I can't say.
I am a civil servant myself. My specialty is IT (computers). There is a lot of IT in government, and my job is basically to do oversight of IT contractors to make sure that they do what they are supposed to do, and to make sure that the American people get good value for their tax money.
That value includes benefits for recipients of Medicare, Medicaid, and Social Security. It also includes the health research done by the National Institutes of Health, a couple of dozen NCI-funded Cancer Centers that do both research and treatment, and the HRSA community health centers.
I have AML, and I recently had a relapse. I am getting chemotherapy for it. I am working part-time because that is all I have the energy for right now. I considered retiring because, quite frankly, my expected lifespan is so short that having enough money to live for the rest of my life may not be a problem. I talked about this with a coworker because I was looking for meaning in my remaining life . She said "Tim, what do we do here? It's healthcare." That reminded me that although I don't see patients, my IT work does contribute to getting people healthcare. My work provides meaning to my life now, and that is why I continue it.
My coworkers and I are serious about our jobs. It's intense. For example, I have a conference call set up with people next Friday (the Friday before New Year's) in which we will be talking about some particulars of an IT contract coming up. The contract is about software testing of an IT system. The system is needed to provide health care to millions of people.
To add to my already considerable experience in the IT field, and to prepare myself to deal with the software testing contractors, in the past few weeks I marshalled my energy and read about 150 pages of difficult, technical papers about testing a large-scale System of Systems. What is possible? How do you do it? What is the best methodology to use? Now I'll be able to judge which testing contractor can do the job and provide the best value for the American people.
Here I am with a very bad cancer, receiving treatment, and I'm putting my energy into keeping IT systems running so that a major part of the American healthcare system can continue to function. That's the kind of intensity and devotion that I see among my coworkers every day. If I died tomorrow, they would continue, but I very much want to do my part, and so do they.
If you want to better understand the American healthcare system I can recommend a source that my boss three levels above me recommended, which is the research reports by the Kaiser Family Foundation. If you want to know what efforts are underway to improve the American healthcare system, you can take a look at the new models produced by the CMS/CMMI innovation center.
in reply to @morganjane
Hope can bring you through the darkest night. When that hope is in an impossible dream, it will bring only despair.
I remain sorrowful because of your plight and wish I could lend you a hand.
I won't come and head length other than two state that I spent 27 years in dc, working in the house and the Senate and working for two persons. I disagree.
I have, in 2020 for a similar problem. And will likely be referred again Tuesday.
Serious question. What is wrong with an addiction if other events will terminate my existence before the addiction would?
Addiction makes a person miserable physically and emotionally.
Continuing to question, not to argue, I'm thinking hopes are addicted to cigarettes. It may kill some after decades and decades of smoking. Others must have their glass of wine at dinner. They're not alcoholics but they've got to have it, so I call that an addiction. I'm thinking that there are addictions that don't have the same terrible outcomes as meth and heroin. So do you believe that becoming addicted to a drug that makes your life better and is given under medical supervision is still a very negative thing?
A person who "has" to drink wine occasionally is not an addict. Opioid addiction is not equivalent to nicotine addiction. See online the Washington Post's expose of Purdue Pharma. This company's family of owners misled doctors into overprescribing Oxycontin.
Morganjane,
I'm so glad people are replying to your posts. There is alot of support out there from others who are in the same position or have been in the past. I wrote a reply on a different post but I want to add something that might make the difference. I recently joined a group called "The Pompa Program" lead by Dr. Daniel Pompa online. If you have the chance please watch his videos and testimonials from people he's helped. I'm on the second month of a 5 month program which focuses on detoxing and seems to help almost any one with autoimmune issues and toxicity problems. I hope you check him out: pompaprogram.com.
Isn't it the moment of most profound doubt that gives birth to new certainties? Perhaps hopelessness is the very soil that nourishes human hope; perhaps one could never find sense in life without first experiencing its absurdity.
Read more at https://www.brainyquote.com/topics/hopelessness-quotes
=vaclav havel